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Plagiocephaly Links

These are mainly online parent support groups. They are all moderated groups and offer peer support. They are not professional forums, but they do have some good links to research papers and a base to use for further information. You will have to register with the groups, to enter parts of the site.

Independently moderated UK based parent support group created to allow discussion and offer support within the UK. A group for all those wanting to know more about plagiocephaly, brachycephaly and scaphocephaly:
http://groups.msn.com/PlagioUK

Independently moderated UK based plagiocephaly care UK support group.
http://www.plagiocephalycare.org

Mainly a parent support group with good links to information and research. For current research papers / abstracts look at the links tab and go into the Long Term Issues Resulting Form Plagiocephaly section:
http://health.groups.yahoo.com/group/AllAboutPlagiocephaly

Also known as CAPPS kids. A support group for parents whose children have craniosynostosis and other non-deformational plagiocephalies:
http://health.groups.yahoo.com/group/CranioandParentsSupport

For parents of children older that 2 years who have deformational plagiocephaly and were never treated with a cranial device:
http://health.groups.yahoo.com/group/OlderPlag

For more information on the STARband™ and links to support sites:
www.orthomerica.com

Foundation for the Study of Infant Deaths (FSID), cot death, sudden infant death syndrome (sids) and child care from pregnancy to parenting:
www.sids.org.uk/fsid


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