Plagiocephaly links

These are mainly online parent support groups. They are all moderated groups and offer peer support. They are not professional forums, but they do have some good links to research papers and a base to use for further information. You will have to register with the groups, to enter parts of the site.

• Independently moderated UK based parent support group created to allow discussion and offer support within the UK. A group for all those wanting to know more about plagiocephaly, brachycephaly and scaphocephaly:
  http://groups.msn.com/PlagioUK

• Independently moderated UK based plagiocephaly care UK support group.
  http://www.plagiocephalycare.org

• Mainly a parent support group with good links to information and research. For current research papers / abstracts look at the links tab and go into the Long Term Issues Resulting Form Plagiocephaly section:
  http://health.groups.yahoo.com/group/AllAboutPlagiocephaly

• Also known as CAPPS kids. A support group for parents whose children have craniosynostosis and other non-deformational plagiocephalies:
  http://health.groups.yahoo.com/group/CranioandParentsSupport

• For parents of children older that 2 years who have deformational plagiocephaly and were never treated with a cranial device:
  http://health.groups.yahoo.com/group/OlderPlag

• Foundation for the Study of Infant Deaths (FSID), cot death, sudden infant death syndrome (sids) and child care from pregnancy to parenting:
  www.sids.org.uk/fsid